It’s been awhile since anyone has updated the website.. because life happened, and like any family, we have challenges popping up left and right that have made it difficult to keep up with everything at once. I do want to thank any of you who have continued to check the site for updates on Krissy and the cause, despite the lack of updates!
So if you aren’t on the mailing list or haven’t seen the recent article in GLAMOUR Magazine!, Krissy is still looking for her match. So keep spreading the word about the need for mixed race bone marrow donors! This cause has become something that I can’t stop talking about with people that I meet for the first time.. and I can’t emphasize more to our blog readers, that the need for bone marrow donors will ALWAYS be so important for people to know about. The registry changes as people get older and the opportunities to find new matches continue to grow as people reach the age of 18 and can register!
Register Online Here: http://marrow.org/Join/Join_Now/Join_Now.aspx?promo_code=
Find it on stands now!
If you haven’t checked out the Glamour Magazine article, it’s in January 2012’s issue on stands now!! so pick up a copy or 2 or 3 and show your friends and family! It is a really wonderful look into Krissy’s experience and who knows maybe it can help a few people out there find their match, including Krissy!! With the holidays quickly approaching, I can’t help but feel the appreciation I have for family, love, and support! Thank you for the wonderful wishes, thoughts, and hope you send our way! Happy Holidays!
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We have been receiving a lot of response to the news about Krissy’s possible match. I’m sorry we haven’t updated you any sooner about her decision. After much thought and debate about the situation with the 9 out of 10 match, Krissy has decided to wait on moving forward with the transplant process. I wanted to clear this up with everyone and let everyone know that we are still looking for her 10 out of 10 match! This weekend we will be holding a drive at the Long Beach Japanese Community Center Carnival! Please continue to keep Krissy in your thoughts and pass the word on about the need for more HAPA bone marrow donors!
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It’s been a long time since we’ve updated for any of you.. and I’m really really sorry for that… but I write again to bring only the BEST news I could ever bring to this blog!!
Krissy can fill you in with more details about what happened when she gets some time… BUT.. I’m Soooooo happy to bring the news to you first! KRISSY FOUND HER MATCH!!!!!!!!!! it’s a 9 out of 10 match. but we will take that!! The City of Hope was going to be contacting her this week to let her know, but she had the appointment today so was told at her appointment! Now we have to wait. There are more tests to run… If her blasts have increased then I think they will start prepping for a bone marrow transplant sooner than later. If she is stable with no change from last year, then they may have her wait 3 months and re-test then. Apparently you can “reserve” the donor for up to 3 months so they don’t donate for someone else, and a donor can only donate twice in their lifetime. Some very important information that really has to be taken into consideration. There are lots of questions that need to be asked and as Krissy gets answers, we will update everyone else.
This is a very exciting time for all of us and we know that Krissy is going to continue to need ALL of your support and thoughts through this new phase in her fight against MDS!
Thank you to everyone for your support, prayers and hard work… We couldn’t have done everything that we have done to find matches for people in need, and ultimately for Krissy, without you! and in the words of my mom (Krissy’s, Auntie Patti) “We’ve found our needle in the haystack”!!
TOGETHER we MADE it Hapa’n!!
-Lindsey
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Here is a link to help you register to be a marrow donor! http://www.marrow.org/JOIN/Join_Now/join_now.html Click on the link and use the code:“mixedmarrow30“.
or use the link: join.bethematch.org/mixedmarrow30. The promocode is good through February 8, 2011. It’s open to minorities and multiracial donors, but everyone is encouraged to make a contribution towards the tissue typing costs. If you are a Caucasian donor, please register without the promo code and use this link instead. http://www.marrow.org/JOIN/Join_Now_Sponsored/join_now_sponsored.html
THANK YOU so much for registering and SEND the link to everyone you know and have them register too!
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Here is a link to help you register to be a marrow donor! http://www.marrow.org/JOIN/Join_Now/join_now.html Click on the link and use the code:“swabfora3m”. or use the link: join.bethematch.org/swabfora3m. The promocode is good through November. It’s open to minorities and multiracial donors, but everyone is encouraged to make a contribution towards the tissue typing costs. If you are a Caucasian donor, please register without the promo code and use this link instead. http://www.marrow.org/JOIN/Join_Now_Sponsored/join_now_sponsored.html
THANK YOU so much for registering and SEND the link to everyone you know and have them register too!
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Okay, so I made Team Krissy a Team for the Be The One Run, which will take place in Long Beach in November. NOW you need to go and sign up to be a member of the team! AND you need to tell your friends to sign up as well! Details for signing up and donating money are below.
Be the Match Presents: Be the One Run in Long Beach’s Shoreline Village at Rainbow Harbor
Saturday, November 6, 2010
7 a.m. registration opens
8 a.m. 5K/1K starts
9:15 a.m. Tot Trot starts
Includes a 5K, a 1K Fun Run, and a Tot Trot
$30 Early Registration by OCT. 1
$35 OCT. 2 to Race Day
$10 Tot Trot
For More Information go to:
BeTheOneRun.org
To Join Team Krissy in the run, visit the link below and click on “Join Team” in the box where it lists all of the team members names: http://www.bethematchfoundation.org/goto/teamkrissy
To donate money to Team Krissy visit the link below and then click on the link below the picture of our outstanding family and Team Krissy supporters. There will be a pop up page that will give you directions on how to give money to our cause. OR you can help me personally reach my own fundraising goal by clicking on my page link or name on the main Team Krissy page 
http://www.bethematchfoundation.org/goto/teamkrissy or http://www.bethematchfoundation.org/goto/lindsey
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Krissy will be on EXTRA! tonight at 7:00, channel 4. DON’T miss it! The last time she was on EXTRA! our website and Be The Match got a lot of response! WAY TO GO KRISSY! I realize this is last minute.. so go TIVO and DVR if you have a chance. Otherwise I’ll try and get a copy of it up onto the website somehow.
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I wanted to say happy mother’s day to all of those that are moms and read this blog. this day is particularly poignant for me because i think about my own mom and how amazing she is. as most of you know, she is stricken with a degenerative disease that causes loss of motor skills, speech, etc. it’s one of the most devastating things to watch happen to the mother that used to do everything for her kids. she was quite literally a super mom. always involved, prepared, and loving. she still gives me that eye when i am being a brat, but most of all, the best is when i know that she understands when i tell her i love her.
mommy, you are still the best. i love you with all of my heart and know that if things were different, you would be going door to door to register people and finding me a match. fear not, though, i’ve been lucky to have several other moms help fill that role. to those moms (you know who you are… my power trio), thank you for being there for me and stepping into that role.
i love you all…
also, as a reminder, if you haven’t signed the petition that is in honor of Michelle, please do so by clicking on the below link:
http://www.PetitionOnline.com/sb1304/
take care…xo,
krissy
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Hi Everyone!
well, there’s actually quite a bit to update on!
first and foremost, I had a doctor’s appointment today and, while there is no trend to report yet, my white blood count (specifically the nupogen) is starting to fall. Typically, my range is anywhere between 1500-1900, however, today it was at 400. Apparently, this is the first line of defense of cells that protect against infection, so doctors want to make sure that it doesn’t continue to fall because then you are susceptible to all sorts of infections, yuck! i go back in 3 weeks to check it again and see if this is something to be more concerned about or if it’s just a blip.
enough with business… on to the fun and exciting things! As some of you may remember, I was interviewed on Extra last summer and the response received from that little segment was amazing!!! (2500 people registered because of it). Well, because I am semi-celebrity (ha! jk), they want to do a follow up on me!!! We’re working out the details, but it looks like this will be more in depth this time AND perhaps some recognizable names will be attached! I’ll keep everyone up on the details as I get them. Exciting stuff! Now, if only we can get Mario Lopez to register on air…. hmmm… next stop, Oprah!
Ok, well, that’s about it for now. I’ll update after my next doctor’s appointment. Hopefully, it’s just a blip!
for now, take care… keep spreading the word.
Together, we’ll make it hapa’n!!
xo,
krissy
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